So many doctors

Hi, Everyone:

Some have asked how I am doing, so maybe it’s time for another update. My world seems to be full of doctors now. I have recently seen my general practitioner, my sleep doctor, and my eye doctor. On September 12th, I saw my prostate surgeon / Urologist, our first visit in over four months. They tested my blood and found no trace of PSA, so I remain prostate cancer free.

I lost 30 lbs so they tested to see if as a result, I might no longer have Sleep Apnea

As for my side effects from the surgery, things are pretty good, and the doc predicts that they will continue to improve as time passes. I won’t see him again for six months.

On September 08, I saw my Oncologist. They tested my blood to see if there is any change in my Smoldering Myeloma. That’s what I have, Smoldering Myeloma. It will smolder in my bones until the day it makes a move, if ever. It’s not guaranteed, but the Doc predicts it will happen; it’s just how my numbers add up.

I’ve been holding this update for those test results, and I just got them today. I will have this test every three months. What they look for is the amount of, “M Protein” in my blood. The reading from this test was 0.8, and the previous test showed 0.8. My first test in July gave a reading of 1.1, so the number has actually come down just a bit, and lower is better.

On August 25th, I saw my neurologist. I am shorter than I used to be. He said my vertebra was completely crushed, but as long as I didn’t have pain shooting down my legs and loss of bladder control (from crushed nerves), I was in pretty good shape and there wasn’t much else to do about the back but let it heal.

I am classified as one with, “tolerable pain.” I have a mild back ache most of the time, but it can be controlled with over the counter medicine, so it’s tolerable. My neurologist wants another MRI this Tuesday. I will also see my Radiologist near the end of the month for a follow up appointment.

The hospital called me the day before my final radiation treatment to tell me the secret radiation treatment patients parking lot, just outside the radiation department door, would be closed the next day. I/We spent the month hiking from the parking structure across the street, having never heard of the secret parking lot.

So, how am I feeling? I’m feeling okay, looking forward to feeling better. I have regained my appetite, and some of the weight I lost. I have a list of physical complaints, but it is short and relatively petty.

I thank God every day, as I have much to be thankful for, including you asking about me now and then, and remembering me in your prayers.

Thank you.

Good news / Bad news

All:

Since my last update, I have continued to enjoy improvements in how I feel. The daily radiation treatments are easier, the pain is much less, and I rarely sleep at the dinner table anymore. I have reduced my medication enough to enjoy again the independence of driving after 6 weeks of passenger only status.

I’ve been working two hour days at my Public Works job and hope to stretch that out soon to 3 or 4 hours. I have regained some appetite and I believe I have bottomed out on the weight loss at 30 lbs.

I’m not sure where the pounds went, but when I tried on my previously snug fitting suit for Meagan’s wedding, I hooked the belt line button, pulled the zipper up and when I let go, the pants went straight to the floor.

Wednesday we got the results of my bone marrow biopsy. It was a kind of, “Good News / Bad News” report. It has been my misunderstanding that I might have Plasma Cytoma, “OR” Multiple Myeloma. I now understand that both are the same Cancer. Both are points on a spectrum of one Myeloma Cancer.

My Oncologist explained that I currently have “a” Plasma Cytoma, but my bone marrow revealed that I have enough abnormal cells that I will likely develop Multiple Myeloma in the relatively near future. At that time, I will have Chemo therapy and hopefully stop the growth of the cancer.

They don’t do a preemptive strike on the Cancer; you have to wait until it develops. In the meantime, my condition is referred to as Smoldering Myeloma.

A hand full of people took at least one turn driving me the 44 mile round trip to the hospital for my daily treatments. My cousin, Abraham Benitez, faithfully drove me almost half the time. He also phoned almost nightly to check on me, and has continued to do so for months. Thank you, Abraham.

I am constantly amazed and comforted by the kindness of others. I thank God for my wife and for everyone caring for me, driving me, praying with and for me. I hope you will continue to pray now and then for my recovery, for Diane’s strength and stamina, and for both of us to remember that God is in control.

I guess that adds up again to praying for God’s Peace. That’s what I pray for each of you.

Until later, Scott